I recently picked up this New York Times bestseller by the same name. WORTH THE READ.
Let’s be honest, allergies don’t necessarily make one feel like a badass. To live safely with allergies, we must often remove ourselves from certain situations instead of confidently joining in the fun.
Having lived in the coastal town of Hilton Head, South Carolina with a seafood allergy, I have stood at many a low country boil watching others indulge while I hover in the corner with an EpiPen and a rumbling stomach. Thanks to my latex allergy, I’ve literally run – not walked – away from friends at parties to avoid balloons. In school cafeterias today, separate tables exist to which children with allergies are assigned, removing them from their classmates and friends.
It can also be hard to feel like a badass if your young child has FPIES. I once took W to run errands with me and decided to not wear our matching uniforms of sweats. Instead, I dressed him in a seersucker onesie and myself in a flowered blouse and skinny jeans. I even refrained from pulling my hair into a knot on top of my head. I was feeling pretty darn good about ourselves and swaggered on into the first stop of our outing. A sweet high schooler said hello and then smiled at W. He paused for a second, looking slightly funny at her, then proceeded to projectile vomit. The moment quickly spiraled from one of shopping in cute clothes (insert regrets about not wearing our sweats and leaving my hair down) to the beginning of one of his worst episodes which ended with us in the hospital for days.
While reading a book doesn’t make these instances stop, nor does it make allergies and their seriousness disappear, there are coping mechanisms, mantras, and just good sentiments certainly relevant for living with allergies. It is also super well-written, hysterical, and sweet.
As an allergy navigator as well as a parent to one, I particularly connected to the parts that covered:
Gratitude – for I am grateful for the foods that nourish us, safely, and the friends and resources we have to go through life with allergies, joyfully
Money – for I am undeterred by the bills for the medical care, organic groceries, and other costs that keep us healthy
Faith – for I have faith that a higher power will keep that Goldfish out of my little’s grasp
Loving Yourself – celiac disease and all
I’ll end this post with the same sign off as the book – you are a badass. (Now go snuggle up with a 100% cotton blanket and read it.)